Patient-Reported Outcomes (PROs) in HIV Infection: Points to Consider and Challenges
Por:
Antela, A, Bernardino, JI, de Quiros, JCLB, Bachiller, P, Fuster-RuizdeApodaca, MJ, Puig, J, Rodriguez, S, Castrejon, I, Alvarez, B and Hermenegildo, M
Publicada:
1 oct 2022
Ahead of Print:
1 sep 2022
Resumen:
Introduction: The aim of this study was to reach consensus on the use of PROs (patient-reported outcome measures) in people living with HIV (PLHIV).
Methods: A scientific committee of professionals with experience in PROMs methodology issued recommendations and defined the points to support by evidence. A systematic review of the literature identified the coverage, utility, and psychometric properties of PROMs used in PLHIV. A Delphi survey was launched to measure the degree of agreement with the recommendations of a group of practicing clinicians and a group of patient representatives.
Results: Four principles and ten recommendations were issued; however, the results of the Delphi showed significant differences in the opinion between health professionals and PLHIV, and polarization within collectives, hampering consensus.
Conclusions: Despite a wealth of evidence on the benefit of PROMs, there are clear barriers to their use by healthcare professionals in HIV care. Intervention on these barriers is paramount to allow truly patient-centered care.
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Filiaciones:
Antela, A:
Complejo Hosp Univ Santiago CHUS, Infect Dis Unit, Santiago De Compostela, Spain
Bernardino, JI:
Hosp Univ La Paz, Internal Med Dept, HIV Unit, Madrid, Spain
de Quiros, JCLB:
Hosp Gen Univ Gregorio Maranon, HIV & Infect Dis Unit, Madrid, Spain
Bachiller, P:
Complejo Asistencial Segovia, Internal Med Dept, Segovia, Spain
Fuster-RuizdeApodaca, MJ:
UNED, Fac Psychol, Madrid, Spain
Spanish AIDS Interdisciplinary Soc SEISIDA, Madrid, Spain
:
Hosp Badalona Germans Trias & Pujol, Fdn Lluita Sida & Malalties Infeccioses, Badalona, Spain
Rodriguez, S:
Gilead Sci, Madrid, Spain
Castrejon, I:
Hosp Univ Gregorio Maranon, Rheumatol Dept, Madrid, Spain
Inst Invest Sanitaria Gregorio Maranon IiSGM, Madrid, Spain
Alvarez, B:
Hosp Fdn Jimenez Diaz, HIV & Infect Dis Unit, Madrid, Spain
Hermenegildo, M:
Hosp Univ Dr Peset, Pharm Serv, Valencia, Spain
gold
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